top of page
BETTEREB.png
betterexist.png
  • Instagram

Resources for the Sickle Cell Community

Whether you’re newly diagnosed, caring for a loved one, or have been living with Sickle Cell Disease for years, these trusted organizations, educational tools, financial assistance programs, and support services can help you navigate your journey.

National Organizations

The nation's leading advocacy organization providing education, support groups, community programs, research updates, and local chapter information.

Centers for Disease Control and Prevention (CDC) Sickle Cell Disease

Educational resources covering symptoms, treatments, healthy living, complications, data, and patient toolkits. 

National Organization for Rare Disorders (NORD)

Educational materials, patient assistance resources, and rare disease advocacy.

Genetic and Rare Diseases Information Center (GARD)

Reliable information on genetics, treatments, and clinical research.

bottom of page